We empower parents of disabled children and young people to become more confident and resilient when engaging with health services.
Research by the Every Disabled Child Matters campaign has found that parents and carers of disabled children face numerous barriers in accessing health services and struggled to navigate the health system.
We believe that we're perfectly placed to empower parents to advocate on behalf of their children and we know that our support has allowed parents and carers to have more effective and efficient interactions with health practitioners, saving time and ensuring an enhanced experience for both family and service.
Developed with funding support from the Department of Health (now called Department of Health and Care), from NHS England, and Health Education England, the Expert Parent Programme draws on evidence of the positive impact of parent-led training and empowers parents of disabled children and young people to become more confident and resilient when engaging with health services, and the other services that they come across. For more information click here.
For health professionals, talking to parents and carers of children and young people with long term or complex health conditions with the right information to hand in an emergency can be life saving.
An Emergency Healthcare Plan (EHP) is a brief document containing the key information about a child or young person's condition. You can find here information about what an EHP should look like as well as a series of ten role play films to help support you in conversations with parents or carers of children who you feel would benefit from having an EHP.